The Jérôme Lejeune Foundation
«I see that there is only one way left to save them, that is, to cure them. The task is immense, but so is the hope»
Prof. Jérôme Lejeune
About us
Our goal is to provide comprehensive, medico-scientifically based care for people with intellectual disabilities of genetic origin.
We are a secular, non-political, non-profit organization and we are recognized as a public interest entity.
We offer specialized
medical care.
We promote basic
and clinical research.
We defend the dignity of the person.
Know more about Prof. Jérôme Lejeune, father of the modern genetics
Our history
The Foundation began its work in France in 1995 after the death of Prof. Jérôme Lejeune, considered the father of modern genetics for discovering, in 1958, the genetic cause of Trisomy 21 (Down syndrome). It devotes between 4 and 5 million euros per year to research. It has a biobank in Paris, with more than 20,000 samples, and 4 medical centers: Paris, where more than 13,000 patients have passed through, Nantes (France), Cordoba (Argentina) and Madrid (Spain).
In 2009, the Jérôme Lejeune Foundation created the International Chair of Bioethics Jérôme Lejeune with Dr. Mónica López Barahona as the President, where they develop training, scientific publications and initiatives in the field of Bioethics.
In 2015, the Foundation created a permanent delegation in Spain. In February 2023, it opened the doors of the first Jérôme Lejeune Medical Institute in Spain, thanks to the collaboration of Álvaro Entrecanales Foundation, among other organizations.
Data
4.1 million euros per year allocated to research
2 million euros have been invested in basic and clinical research in Spain
For the benefit of 12,000 patients attended annually
2 annual editions of the Diploma of Expert in Bioethics and 1 annual edition of the Master's Degree in Bioethics
Quiénes somos
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